On 6/3/2008
jean60 wrote:
I hear you and know you are worried and cannot get a lot of information about Spindle Cell. I had a 3.2 cm removed in Jan. 2003 and I am doing wonderfully. It has now been over 5 yrs. I have done as much reading as I could find and I've concluded that this type of cancer {If you were having cancer} is the least invasive. Unfortunately it is very rare and any studies on it are few and mostly incomplete. You will be fine. Just keep thinking positively and you will live a LONG time.
Jean
Dear Jean, I am extremely happy to hear from someone else who has this form of cancer. The original group of medical and radiation oncologists only recommended radiation. Then I went for a second opinion and chemo was also recommended. My mass was removed in February 1.3 cm with clear margins, triple negative. The sentinel node bx. was done a month ago and was negative. Due to having only one kidney and an inability to tolerate the decadron without having arrythmias, chemo hasn't started and I'm not so sure that it will. Adriamycin, cytoxin and taxol were recommended . Since I still haven't started any treatment including radiation (I had a lumpectomy), I'm beginning to think I should just get radiation and hope for the best. What chemo agents did you get and how long after surgery did you start chemo? Did you have a mastectomy or a lumpectomy? Did you also get radiation? Most of the studies I've read suggest that chemo isn't proven to work for this cancer which really doesn't make me want to risk the possible side effects. And naturally I'm terrified to make the wrong desicion. Any input from somebody who went through this is greatly appreciated and goes a long way in keeping my spirits up. Thanks so much for responding to my oroginal message and giving me some hope. I'd love to hear from you again.
Ruth