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Brain Mets-Unknown Primary (Cup)

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Subject: Brain Mets-Unknown Primary (CUP)
Date: 03/31/2008

I have posted here before and on other sites and am still looking for someone who can share their experience with multiple brain metastasis, the treatment they had, the side effects they experienced and the outcome.  In her case, this is a metastatic cancer of unknown primary-CUP.  No primary was ever found in her neck, her lungs, ovaries, breast, etc.  Just tumors to the brain.

In March of 2007, my wife had multiple tumors removed - 1 large on surgically, the four others with Gamma Knife.  She then had 30 days of whole brain radiation.  She is just now showing some of the cognitive effects of the WBR, but they are subtle.

If someone else has a similar experience or has had multiple treatments with gamma or cyber knife, as it appears she may have, I would appreaciate hearing your story.  If someone knows what the real prognosis is for this type of disease I would like to hear that, too.  We need to make those arrangements as well.  The internet is a dangerous place for statistical information when it comes to cancer, especially on CUP!!

Thanks

 

Messages History for "Brain Mets-Unknown Primary (Cup)"

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