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Lgl Leukemia - Living From Transfusion To Transfusion

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Subject: LGL Leukemia - Living from transfusion to transfusion
Date: 04/08/2008
Hi there... My friend Beth is 35 and has been battling LGL Leukemia for several years.  It went away for abotu two years after a year of oral chemo, and then it came back about three months ago.  They put her back on the oral chemo but she can't keep her hemoglobin up.  A normal person is a 16... her oncologist tries to keep her around a 9 through weekly transfusions.  On Friday she had to get three bags b/c she was down to a 7.  Anyone else going through this?  Do you have any words of wisdom for us?  She is literally living from one blood transfusion to the next... she doesn't even need the weekly checks... she can tell her hemoglobin is really low when she can hear her heart beating in her ears.  It SUCKS! 

Messages History for "Lgl Leukemia - Living From Transfusion To Transfusion"

  1. LGL Leukemia - Living from transfusion to transfusion
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