On 4/11/2008
Sedonalady wrote:
Hi Lori,
Since you have found this site, you are off to a good
start. This site is a good source for information. I'm assuming your
cancer diagnosis is primary peritoneal cancer. Your friend has
given you good advice for the CA-125. You don't mention your support
systems, i.e. spouse, family. Do you know any nurses or medical
people? What exactly did the "doctor" say to you? Do you have more
than 1 doctor? Why did you have a total hysterectomy (I'm assuming you
had a total hysterectomy) in the first place? You reference that your
abdomen has been suspicious for fluid since before January. I'm
assuming your story begins with your primary care doctor who then sent
you to an oncologist.
I am an ICU RN. My spouse has been suffering with ovarian cancer since 1995. The last 3 years have been intense. Knowledge is power. Write
back and maybe you can find some needed assistance here.Yes, there are
happy endings but they don't just show up. It takes friends, family,
professionals and people from this site that can help you with your
positive ending.
Regards
JS
Thank you so much for responding. I cannot tell you enough how much I appreciate it.
I got married for the first time seven and a half years ago, no children. I had the hysterectomy because I had been having issues with fibroids. They took everything and then I had a scan and they say fluid in 2002 or 3 the follow to that was negative and for some reason we never enter that again until this last January when I told my OBGYN at my annual that I was still not feeling like myself. She then ordered the CT and the oncologist saw fluid but not much. His response was to wait three/four months and check again. No CA-125 was ordered at that time. This Tuesday I had the Scan and lots of fluid. Yesterday I had 3 1/2 liters of fluid to drain. They are testing it and on Tuesday I have an appointment with the oncologist that I saw in 2003. After my CT Scan and phone call from my OB I asked for a CA-125 and did that on Wednesday. I am sure they have the results. I am upset that this was not watched closer and a little upset with the Oncologist. I spoke to my OB yesterday late afternoon and told her I wanted a second opinion. My primary doctor has not been involved with this but I have copied him in.
We just bought a new house and my next door neighbor is a retired oncology nurse. I have asked her to join my husband and I for our appointment on Tuesday and she has agreed. For that I feel blessed.
I am so sorry that your spouse is going through this. I don't know what to expect but it doesn't sound pleasant. She is lucky to have you in her corner. My husband is paralyzed at this point.
I agree with you about Knowledge is Power. I think right now I am at the shocked stage! Any advise you can give me is welcomed.
Thank you so much!
Lori