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I Need Someone Who Can Help

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Subject: RE: I need someone who can help
Date: 04/11/2008

Join the kidney cancer email support list Kidney-Onc.  A couple of the listmembers have had your problem and will tell you how they got treatment (can depend on where you live, some states are more helpful than others).  See http://cancerguide.org/kofaq/ to join.

Contact the Kidney Cancer Association at 800-850-9132 and/or Cancercare at 800-813-HOPE ; they may be able to help.

You should know that solid kidney masses are not usually biopsied unless tumors are found outside the kidney as well.  A very high percentage of solid tumors are cancerous, and with needle biopsy, there is a risk of spreading the cancer, and with small tumors such as yours missing the tumor with the needle.  Usually, surgery, preferably a laparoscopic partial nephrectomy  (although a nephrectomy, talking out the whole kidney, is probably less expensive),  for a tumor as small as yours,  is done without a previous biopsy.  You might call the American Cancer Society back and let them know that a biopsy is not indicated for kidney cancer.  

You should also know that the difference between 2.3 and 2.4 is just a millimeter--very, very small, and possibly just within the error tolerance of a CAT scan--your tumor may not have changed in size at all.Your tumor is very small; you have some time to find someone who will do the surgery.

There is an email support list that deals with medical/legal insurance issues and health care access (see http://www.harp.org/ , scroll to the very bottom of the page, and click on "Click Here to Join the Dialog Listserver."

Best of luck to you.

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