I just wanted to share some good news that might give hope to anyone who is or has a loved one with "High Risk" Myeloma, including any genetic deletions or chromosomal translocations.
My father has every one of the "poor prognosis" signs, but he remains in remission after receiving his four cycles of Velcade+Cyclophosphamide+Dexamethasone.
So he has been in "near complete remission" for three plus months now. I was really worried because his doctor was unusually silent about his condition during the last meeting, and put him on Rev plus Dex. My worst fear was that he was having a progression and was being pulled off this clinical trial.
I guess the message is never give up, never give up hope. These new meds are truly helping, even in cases like my father's. He was told up front that his situation was dire.
This was a real lesson to me to keep my chin up and just visualize a future where my father and I are working together as we always have. It was hard to do that for a couple of weeks, after learning about his genetic situation, but I'm going to just do my best to keep going forward.
I know it's hard sometimes, but try to keep hope alive, because MM treatment is changing quickly.
Hugs to all of you.