On 4/12/2008
TNmom3 wrote:
Hey there, I'm an ampullary cancer survivor of 9 months so far. I just completed chemo but was wondering for those of you "further along," have you changed your diet, been given any tips on diet, supplements or anything to try and prolong a reoccurrence? I mean I feel great but don't want to just wait for something to pop up if there's something I can do.
The other question I had was so far I have learned of one ampullary cancer patient that survived 9 years. I keep hearing about percentages but would like to hear some GOOD NEWS about survival. Do you all have any?
Thanks so much for being there to listen!
Mary
Hi,
I had a Whipple procedure in 1998 to remove an ampullary cancer tumor and am in reasonably good health. You don't say whether you had a Whipple. I have posted several messages since last year about my experiences, found under the common bile duct cancer heading. I did not have chemo or radiotherapy. It seems to have been caught before metastasis. About diet, I was told to abolish all artificial beverages, especially the cola type and maintain a balanced low-fat diet. I take thiamine (Vit. B1) supplement to compensate the lack of a duodenum, after having neurological problems in my legs about 3 yrs ago. After the Whipple I had constant bile refluxes and then bile deviation surgery also in 1998. This was not really successful and I'll have to have another type of deviation surgery. Bile enters my stomach and comes up the esophagus. Painful and does no good, causing bronchoaspiration and pneumonia. I take Sucralphate twice daily to alleviate and protect my stomach against bile. I hope this info is of help.
Annettejb