On 4/14/2008
kevinoz77 wrote:
On 4/14/2008
Juule wrote:
I have had glioblastoma multiforme for 2and a half years . I will be getting my latest results from my mri in a couple of days. praying.... I was given temodar and radiation. If you still get on please write me I want to talk to someon who has this and I am having no luck finding anyone to talk to my children are in college but want to believe it won'[t come back.
Hi,
I am 30 years old (male) with a young family and live in Brisbane, Australia. I was diagnosed with an aggressive GBM in my left parietal lobe which was confirmed by biopsy in Oct 2007 measuring approximately 6.4cm x 4cm x 5.4cm. However, after much discussion (the pathology was not looking standard), treatment commenced anyway.
It was only some weeks into treatment when it was discovered from pathology reports that there was evidence of a PNET tumour surrounding the GBM. I consequently underwent a spinal MRI which came back clear showing it had not spread.
I underwent 7 weeks of concurrent treatment of Chemo (Temozolomide 160 mgs every day) and Radiation which began on 31 October 2007 and ceased on 17 December 2007. My first post treatment MRI Jan 15th 2008 showed a significant reduction in size of my tumour. Now 5.5cm x 3.6cm x 4.8cm, Radiation had ceased and cycles of Chemo tablets started in Jan 2008. I am now just about to start my fourth cycle of Chemo treatment (Temozolomide 400 mgs) for 5 days out of every 28 days.
I had an MRI this morning and find out results tommorow. Hopefully it continues to reduce in size or at least halts it's progress. But for now my Temodal is doing it's job. Fingers crossed for us both.
As for family my liitle boy is 3 and I find it a blessing as We dont have too talk about cancer, just toys and fun stuff. But I make sure that everyone around me is realistic and understands the seriousness of the situatiion (sometimes bluntly) I think it is important to do this.
I hope you are feeling well today.
Cheers Kev
I try to let them all know I am not going to be around, but they seem to not hear me .......... I hope that they all are ok when i am gone..Julie
thanks for writing me. I tried to find a support group but my Dr says there aren't any because this cancer is not common.
julie
USA