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Glioblatom Multforme

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Subject: RE: glioblatom multforme
Date: 04/15/2008

First of all - congratulations on 2-1/2 years of fighting this beast!  Keep up the good work!

As for support - is there a group at the hospital where you are being treated?  There is one at both of our local hospitals.  Plus, continue to use this board as a sounding board, for support to vent, whatever...

One thing our doctors told us when my husband was diagnosed with GBM - when we asked "how much time?" they told us that he wasn't at any point where the clock was ticking... in other words, they wont give a timeframe until such time that symptoms would indicate limited time.  They emphasized that there were lots of survivors who have had it for many years, including some in their program going on 15 years!

My husband too is doing Temedor.  Trying to keep at it for 24 rounds = we shall see, but so far, so good, thank heavens.

Please check to see what resources the hospital can direct you to for support - my husband really takes comfort in meeting with other cancer survivors that we meet at Kids Konnected (kids with parents who have cancer, and the parents chat while the kids do activities)  Do they have a Wellness Center near you?  People have told me that those are great places too!

 Good luck, and God Bless

Gayle C, wife of John C, GBM warrior since Sept 06

Messages History for "Glioblatom Multforme"

  1. glioblatom multforme
  2. RE: glioblatom multforme
  3. RE: glioblatom multforme
  4. RE: glioblatom multforme
  5. RE: glioblatom multforme - they can get smaller
  6. RE: glioblatom multforme - they can get smaller
  7. RE: glioblatom multforme
  8. RE: glioblatom multforme
  9. RE: glioblatom multforme
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