It's amazing how sometimes I read these posts for weeks and find very little I can relate to, then out of the blue I am compelled to respond to multiple posts...
My mother was diagnosed w/ GBM in Oct '06. She was then 67. I just wrote the synopsis of her journey in a thread something like "Right (brain) Tumor.. No Problem", so I won't bore you by repeating it. She too was tired of the trips to the doctors, MRI's bloodwork, waiting for the pharmacy to get the rest of the Temodar in stock and sleeping all the time. She's been off chemo for 10 months. It's not that she's regained anything that has been lost, but there is more peace and stability in her life (and she sleeps very little other than night time). The anticipation of MRI's and gut wrenching waiting for results is gone. She weaned herself off Decadron and Dilantin (under Hospice's oversight). Just takes one Tylenol as needed. We've settled in for whatever the future brings. Yes, she sought a referral to Hospice when she decided to stop treatment and was given a poor prognosis, but this has been a most pleasant surprise! Mom is visited by a nurse weekly, social worker and chaplain at least monthly and we've even started to use respite support so our family can continue to live in the big wide world for which the acronym GBM means very little...