Hi, I finally surfed long enough to get to this forum of fellow GBM1V experts in training. We certainly learn more than we ever wanted to know.
My Dad was dx'd in Dec 2007. He is 73 years old. He had a partial resection of 90% approx. He recuperated from surgery very nicely and even went thru 6 weeks of radiation and temador with minimal side affects. He is now on 5/23 for April and May and will be MRI'd again at that point. We felt we had a reason to celebrate after his mri at the completion of treatment indicated things stayed the same or possibly shrunk a bit. However, since that celebratory day, things seem to have gone down hill. I realize the 5 days of temador in April was a much larger dose but I cannot attribute his current symptoms to that necessarily.
Besides the personality changes we have seen from pre surgery to post surgery. Which is difficult to deal with on its own.....all of a sudden my Dad has no interest in anything. He is exhausted.....does not know what day it is or what time it is. Has no appetite whatsoever and refuses to keep hydrated???? Has no desire to eat or drink.
Understand this was a very independent man who still worked full time up until his surgery on 1/3/08. Very into his computer, quicken programs etc. but has no concentration for it now. Golf lover no longer.
He has been weaned off of the steroids and anti seizure (never did have a seizure) for at least 3 weeks. Last radiation was 3/5/08?? We are scared. The Drs do not tell you what to expect --is this something he can bounce back from toward some quality of life? Sorry this is so long. I hope someone can share insight. I dont even know what dr to discuss this with. Surgeon? no Oncologist? Maybe but he is very technical -
Help?