Hi rajsaju,
Husband did three rounds of Sutent and didn't work. Switched to Nexavar 4/17 and had CT on 6/12 - nodules in lungs got larger 2 doubled in size and new one appeared. Good news is mass on Posas muscle did decrease in side and did not spread to bone. He is starting Torisel 6/23 once weekly infusion. 6 weeks and we see how it is working. The emotional part of all of this I think is the hardest. Keep me posted, keep strong and remember there are many people out there who love you and want to keep you so close to them. Let them in. Katrina
My husband
Hi rajsaju
On 5/15/2008 rajasaju wrote:
On 4/15/2008
KatrinaR wrote:
On 4/15/2008
rajasaju wrote:
I am suffering from renel cell carcinoma with 5-6 sub cms pulmonery noudles in lungs. I underwent left neprectomy in April 07 and was on interferon alpfa 2 b till 1/08. I switched over to sutent 50 mg daily 4 weeks on 2 weeks off. I have been managing side effects pretty well. I am about to start cylce. will somebody guide me when shall I go for review of my lung noudles (CT scan). Would also require advice for keeping my morale high
Rajasaju, my name is Kathy and my husband too has nodules on his lungs - left kidney removed in April of 07 and nodules showed up in September of 07. My husband was on 37.5 of Sutent for 3 cycles and then Dr. did CT scan. The CT scan showed no help using the Sutent. Nodules doubled in size. We see Dr. this Thursday 4/17 to see next course of treatment - thinking Torisel. If possible, I would recommend having CT done after each round, but Dr. seem to think that isn't necessary, well Rich is proof that maybe we could have seen it wasn't working before tumors got bigger. As far as the morale goes, I hope you have someone to help keep you strong. It is so difficult and if you are alone dealing with this must be even harder. This site I feel helps me. Keep the faith and keep in touch. Kathy
Hello Kathy,
Hope your hubby would be feeling better now. are u still continuing with sutent, or shifted to torisel. I am under going CT scan on 17/5/08 as i have also complted 3rd cycle of sutent 50 mg. Pl do inform me about your husbands status.
May God give long life to both of you
RajSaju