Hello everyone!
I'm so thankful for this site where I can really learn a lot from all of you nice people.
I was diagnosed with MGUS kappa in November 2007. I had many, many symptoms for a couple of months before the diagnosis like: horrible and frequent headaches, severe tiredness, skin issues, strange infections (like oral aphtosis), series of day and especially severe nigh sweats, lose of voice, memory, concentration and overall physical ability...
Bone marrow biopsy made in November '07 showed "10 or some more" percent of MM cells involved.
Since then 'till this day my blood test were stable and as follow:
- low (but still within normal range) white blood cells
- monoclonal IgG kappa 2,2g/l
- everything else tested normal, including x-ray and MRI examinations
Since I've been diagnosed I completely changed my diet and started taking supplements advised mostly from the MM-forums and "Margaret's corner", I diminished stress (a lot), returned to some old nice habits like long walks in the nature, cycling and reading and also started some new activities like tai-chi.
And this is the first topic I write to some forum... I do have many questions, but I'd like to start with the following two since they are present at the moment:
1. Could the superficial, very sharp pain when touched, on the upper margin of a pelvic bone be the symptom of MGUS/MM?
This superficial pelvic bone pain comes and goes in time. Sometimes I feel it at some move or while walking, sitting, but mostly it REALLY hurts by touching the tender spot. The most painful is actually just one little, a square cm big spot.
As I read in some introduction MM cells collect in the bone marrow as well as at "the top" of the bone. So I wonder: if they collect at the upper margin of the bone, just underneath the very well nerve supplied periosteum, can they then cause irritation and thus the pain?
2. I experience quite frequently loss of the voice. It means that suddenly I can really hardly speak. It feels like "having something in my throat" and just can't get rid of it. Last few days it even affects the swallowing. And I still haven't got the answer from the docs. First I thought it was because of the reflux from the stomach, but it was all normal in the gastroscopy.
Any ideas? I will be very pleased to get some answer or a tip. Thanks!
Best wishes to all of you!
Robert, Slovenia