I feel for you. When my husband first got diagnosed 7yrs ago, I just quit my job to be a stay-at-home mom. We went from 2 incomes, to 1 income, to 0 income in a month. Up until the beginning of this year I worked whenever I could. But now all I do is stay home with him and volunteer with the local recreation dept.. It keeps me busy. My two oldest and myself takes turns staying with him. I have a schedule worked out, so I know when he goes to sleep I have about 4hrs before he gets up again. Over the last 7 yrs my faith has grown greatly. I used to worry about bills, food, etc.. But God has taught me to just have faith. When I relied on myself, we struggled all the time. But now I leave it up to God. We always have enough food and bills get paid. We don't live the life of luxury, but our needs are taken care of. Your church family will help if they know what is going on. Sometimes they help and I don't even know until it is done. My husband has seizures both asleep and awake. It has taken years and at times I just think I can't do it anymore. But God gives me the strength. Just like last night when I was giving him a shower at 11p.m. to wear he didn't smell of urine. But God has given me the energy and strength to be a baseball mom today. God is my rock and I depend on him first and then everything else falls into place.
Trust in God and he will provide.
Bridget