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Ogliodendroglioma

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Subject: RE: ogliodendroglioma
Date: 04/17/2008

My heart goes out to you. My husband was diagnosed with a oliodendroglioma last May, a week after his 30th birthday. I know exactly how you feel when you say "you have not lived for seven years." Sometimes I believe I am faking life and going through the motions. They say he may have 10 years. That sounds great when you hear stories that people have shorter life expect. However, when it is your huband and your 31, with three small children it is heart wretching too. I am at the stage where he has full capacity. Seizures occur maybe every six weeks right now, he is on phenytoin 530 mg, and that has been really reliable. Anything lower he has a seizure. He is on Temador, 8th month. So far the tumor hasn't grown or shrunk. It is so scary to me though when I think of the future. My husband is such a great man and I want my children to remember him, know him and share their klives with him. My sons are 3 and 5 and a daughter who is 12, and a Daddy's girl forever. The umor is in the right frontal lobe, and they cannot do surgery because it would cause much harm to the healthy area, it is like sugar in a cake batter I am told. May God keep watch over us and all that need him.  

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