Hi All!
I just found this site and have read the wonderful messages people have left, so I thought I could share and benefit from your experiences. My name is Maggie, I'm 27 and my Mom was diagnosed with PPC last june of 2007. She was diagnosed when she was having shortness of breath and was found to have a pleural effusion of 2 liters. The next few days in the hospital were very scary! The fluid came back positive for malignancy and we were off from there. We met with an oncologist and oncologic-gyno. She underwent rounds of chemo (Taxol and Carboplatinum), before having surgery to remove a large portion of her omentun and total hysterectomy, then another three rounds. At her time of diagnosis I believe her Ca-125 was in the thousands and currently I am happy to say it is 9. However on our last 3 month CT she has a mass near her Colon which is borderline on a PET scan, so we go for surgery this monday june 2, to have it removed and sent to test the mass for malignancy and tested against several diff. chemo meds. Although her CA-125 didn't rise it could still be cancer of a different sort which my god I hope not!
I just thought I'd share my experience with you and get some feed back! We are also looking into some trials with different types of chemo using heated meds washed into the abdomen. I am also a nurse which actually makes this even more difficult because I feel being in this field robs you of some of your optomism. I know we can fight it though!
Maggie RN