Warning..RANT!!!!
If it wasn't enough that the surgeon told us he got 80% percent of Rob's GBM tumor...only to have the radio-oncologist point out 2 tumors that weren't touched....and then we were told that Rob was going to get targeted radio-therapy...only to realize he is getting zapped on 3/4 of his brain...NOW I find out the pharmacy wrote his instructions incorrectly on his temodar bottles....the bottles say 160mgs monday through friday....i just spoke with Rob's neuro-oncologist's assitant and she says OH NO!!! he is supposed to be taking it 7 DAYS A WEEK....ARRRRRRRRRRRGGGGGGGGGG
Now Rob has to have an MRI next week to make sure everything is ok...because the temodar is all screwed up.
The neoro- oncologist wrote the right script. and they say the pharmacy KNOWS that temodar is taken 7 days a week.
crud!
thanks for letting me rant
ps After double checking with and getting the script, the neuro-onc did write the script properly. The pharmacy is a specialty pharmacy that deals with chemo all the time. the bottles even say take i hour before radiation treatments..Monday through friday.... for 42 days. So I do blame the pharmacy. They read the script incorrectly.
When your dealing with the only chemo approved by the FDA for brain tumor patients that have very little hope for a cure...it just blows my mind that the directions were not printed on the bottle correctly. And that I was stupid enough to trust them. What else can i do...call about every med...to double check?
sorry for the venting...i really don't get it!
Eve
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DH Dx 02/22/08 GBM Frontal,temporal,parietal lobes, 80% resection(?) currently on temodar and 6 weeks radiation