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Gbm New Diagnosis

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Subject: GBM new diagnosis
Date: 04/20/2008

My mom, 71, was diagnosed with GBM 4 about a month ago. Location- Left medial frontal parietal about 2cm.  She has a surgical resection (doctors say about 100%).  She has weakness on her right side particularly her right foot and needs a walker and leg brace to get around.   We are waiting for our appointment with a neuro-oncologist from Columbia. From my research and this helpful website  I suspect she will be put on Temodar and radiation at least for the next 7 weeks.  My mother has a great attitude even though I believe she knows how bad the prognosis of this disease is.  I can tell she is trying to "settle up affairs." As you all know this is very tough for all family members.  My sister and I don't want to leave her alone for a second because we know how precious and valuable time is with her.   I am worried that as we wait to start chemo and radiation additional tumors may be developing.  In the meantime we have started my mom on Protocel- an antioxidant supplement.  I don't want to believe we only have about 1 year left with her.  I understand that older people may do worse with treatment.  She is also diabetic, overweight, and has HBP.  I would like to hear from people with a similar situation so I can be as prepared as possible. Any suggestions on successful treatments would be appreciated. Thanks for all your postings.  It has been very comforting knowing I am not alone with this struggle.

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