On 4/20/2008
BelindaBrit wrote:
My Mum is 67 years old and outside of the EC she has, she is a very healthy person. She was diagnosed 7 months ago and has received the full treatment of Radiation and 3 sessions of chemo. We looked into Cyberknife radiation, but with the doses she has already received it was decided after consultation with a few doctors that it was too dangerous. Her Tumor has shrunk considerably and is located at the level of her voice box.
She is now at the point of deciding whether to do the Esophogectomy or to try and keep the cancer at bay with future Chemo. We have been reviewing statistics of course as would anyone of survival rates and of course the importance of the quality of life. she has been told her voicebox would be removed as well. Could we hear from people who have had the surgery and also from those who have not as to what to expect with time period of pain, rehab time frame, and if they feel their quality of life was worth the surgery. From those who did not do the surgery for whatever reason. My Mum would be having the Surgery down at the University of Miami.
I have read so many stories here and am so thankful that a site like this exists. I know we have some excellent Doctors out there doing the best for us, but the importance to hear from those who have gone through this is as vital. Thank you all.
I am a 40 year old male whom had the surgery on jan 25 08. I weighed 210 pounds before surgery. I now weigh 150. It has been rough I tell you.
I was in the hospital 10 days. The first week is rough not being able to eat or drink anything. Being the worst because of pain meds.
With tube feedings I felt great. After removed I have been having dumping problems and now learning what to eat and what not to eat. I feel sick alot and do not want to eat.
I do not have to take chemo or rad docs say all clear at this time. God willing will stay that way. I had stage 2 tmo 22 cm from my stomach.
I have been asked if I would do this again. My answer right now even though I keep being told things will get better. I say no never again.
I don't think anyone can tell you what to do about your mother. Except her I would do whatever she wants to do.