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Gbmiv Returns

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Subject: RE: GBMIV Returns
Date: 04/21/2008

Kara,

I'm so sorry to hear that your Dad's tumor has regrown. Seems he was doing everything they said and it still came back. I'm sure that is so heartbreaking for all of you. My dad was similar to yours w/the surgery and tumor location...he only did the radiation and had 7 months free of the beast. In feb. his started to come back, he tried the oral chemo, didn't work and in April is had grown quite a bit...they suggested a 2nd surgery....actually insisted on it and he had it partially removed on April 11. He is still in the hospital recovering and he's not in the best mood. He's actually in a horrilbe mood and I'm wondering if the 2nd surgery was worth it? Obviously his speech is effected and he can't express himself and it's really sad. Our situation is a little different though, he lives a lone and the hospital won't release him there w/o 24/7 care. He just wants to go home and were trying to listen to him, but also the doctors so that he's safe too. I just wanted to let you know how a 2nd surgery is taking place right at this moment. My dad doesn't have the fight all in him. He hates the meds and he doesn't want to live like that. I'm not sure why he agreed to this 2nd surgery, but he did. In our area they mentioned he had to do more chemo and more radiation. I'm wondering why your dad can't have more radiation? He probably finished up the same time my dad did...in September? Although I believe that gamma knife is a radiation process. Good luck in your decisions. Being 23 and having to see our father fight thru this must be so scary and difficult. I'm 36 and have trouble. Your dad is young and he sounds like he has a fight in him. I totally understand your thoughts on all the possible decisions and how to make the best one? That Avastin sounds promising from what I've read on these boards. Maybe there is a way you can look into that? Maybe someone on here can help with information on it. We haven't spoken to the oncologist yet about what kind of chemo they are suggesting. The temodar did nothing for him in March. My dad doesn't want to take it though, so we may never get that far.

Good luck to you! Stay Strong.

Jill

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