As many of you know, my father, age 50, has just had his first recurrance....
1.4 cm GMB IV
In the front of the left temporal lobe.
The last 2 days he has had 4 spells where he said he feels he is in a state of Deja Vu.... said he feels as if there is a movie playing in his head... he said he can hear it, but he doesnt know what movie it is. The last two spells have been accompnied by a bad odor.
I am aware of the term Aura....
I am also aware the high chance of seizure....
What should we do?
His MRI was about a week ago. No swelling noted, just new tumor.
He currently takes 400mg Dilantin a day
They don't want to put him on a steroid at the risk of lowering his WBC's prior to starting up the new dose/combination of chemotherapy.
Do these little spells mean that his tumor is progressing even further? I have informed his Doc about the spells and they said just to watch him, and that a seizure wouldnt be impossible at this point.
Well.... Ive already seen him have 2 seizures, massive ones 9 months ago... and Im scared to death of witnessing another.
Have any of you or your loved ones experienced this?
If so.... did it lead to a future seizure?
How did you treat it?
We have had 9 excellent months ... I don't want to give up now.
This "ef'ing" sucks though. I am 23 years old, in my 6th year of University and JUST WANT A NORMAL LIFE.
I know that sounds selfish, but our lives have changed SOOOO much in the last 9 months... and I just can't believe it. I dont even know how to take it anymore. I want one normal day.
No more talk of Chemo... radiation... surgery... seizures....death....calling the lawyer to get the will straightened out... crying....crying....crying....tumor....doctors.....nurses.....hospital....cancer....
....tears....having fundraisers.... brain....scared to leave him by himself.... sadness.....fear....frustration.....doubt....prayers...
Wow.... how our lives have changed.
For those of you who have been fighting this battle even longer than my family.... god bless you and your families.