Hi to everyone,
My husband had surgery on March 10 at Duke, removed over 90% of tumor and he is doing well. We are getting ready to start radiation and chemo (temodar) next week. It should of started sooner, but the initial diagnosis was grade II, then changed to AA III, so we are a little behind. We have listened to Duke, the radiologist and oncologist here in Louisville and we hear the same thing every time. The standard of care is radiation and temodar. Today I found Dr. Arenson's web site in Colorado and see how aggressively he treats grade III and IV tumors, much different than the others. My question is, should we contact Denver, hold off treatment and go see Dr. Arenson? Should we proceed with the standard of care? I know there are so many variables with this disease, but being aggressive seems the logical thing to me. I am wondering if I call Duke and talk to them, if they would be willing to listen and try a more aggressive approach? Their statement to us before was, we try more things when the tumor recurs. Who wants to wait for that? Lots of questions; can anyone help with some answers..or at least some thoughts. Been there? Done that?
Blessings to you all,
Debralynn