Hi,
My Father has colon cancer, secondary stomach and mets to the liver. He was diagnosed in September so is now living on borrowed time. He has had a stent inserted into his stomach to enable him to eat, this is now starting to get over grown with tumor at the top, so sometimes he vomits and sometimes the food stays down. He had chemo in November/December but it didn't work for him. He is now reasonably comfortable at home on a syringe driver , with so many medications(too many to name), he is still fighting to stay alive whatever , which I admire because we all deal with things in different ways. He is just not ready to die just yet.
I live two hours away but am still going back home to see him every week and take him out when possible . He stills wants to eat but his main problem is his horrendous tongue, its red, like sandpaper, split, the mouth is full with ulcers. He has been given some stuff for thrush in the mouth, sorry I can't remember the name, a mouth wash and something for the ulcers. He told me today I can't eat or talk much because my tongue just hurts so much. He goes to Hospice on a Friday and they are trying to help him. Does anyone know of anything else we could try to help him feel more comfortable.? It's such a shame , he has spent two weeks in hospital getting his pain relief right and now something else pops up its ugly head.
Ever since he was diagnosed in September, each week or month something else has happened ,to stop him from enjoying some quality of life.
I feel my Father has not got long left to live but I would like to be able to take him out and he can at least say "I feel ok today".
I have to say I have appreciated the use of this board because I posted a message back in September because I was not coping well with my Fathers diagnosis but I have been given so much support from some lovely people who have themselves suffered either as the patient or the carer.
It's the most emotional journey I have ever been on and one which I don't wish to repeat in a hurry.
God bless to everyone who is struggling with this disgusting disease. Lets pray for some success stories please.
Gail