On 4/24/2008
clarejoanne wrote:
Hi everyone
Hope you don't mind but I just wondered if it was 'normal' whatever that word means ... to respond really well to Temodar/Temezolomide. My mum is on her 3rd round and has had absolutely no sickness even though she's 57 and not well as this is her second brain tumour and this one is inoperable ... she was paralysed down her left side and literally bed ridden and last month I thought I was losing her .... she couldn't even stay compus mentus sat in her chair. Now she's walking with a frame, her speech is more coherent than mine (lol), she's dancing in bed kicking her feet around, she's getting stronger everyday, she's in extremely high spirits and she quite simply is acting like someone who's ok if you get what I mean. we're all delighted but I dont' know whether we should not get our hopes up. You can see mum's history below. Just wondered what your thoughts are.... I have a guy on here who I like to hear from and Nancy as well ... Chris is the guy ... think he calls himself Chiefnnails - he may pick this up. He was having an MRI early this month but has been on Temodar for a long time so Chris if you read this it'd be lovely to hear how you're doing. Anyway, I don't know if all the supplements are helping mum too but something is! Honestly the differenc is amazing but I'm scared that she'll get her hopes up too much; that we all will and it'll be shortlived you know what I mean...
Clare
d /o Judy 57 y/o
March1995 right lobe tennis ball sized oli with headaches,
seizures ... resected, full whack radiotherapy then no recurrence or
treatment for 12 YEARS!
Sep 2007 After a couple of years 'clumsy' falls dx 3cm/3cm inoperable astrocytoma Grade II with left sided paralysis,
Oct 2007 Temodar 5 days then stopped as opted for Healer and supplements
November 2007 walking again
December 2007 clear MRI December, but by end December problem walking again and becoming very weak
January 2008 fell broke spine and very big with lymph swelling, left sided
paralysis again, now in hospital confined to bed
March 2008 MRI, tumour back 4cm/4cm,
April 2008 3rd round of chemo 5 days/21, can move left side again and balance even though has been bed ridden for 3 months while spine healed and decadron muscle atrophy! and told would never walk again
Supplements: Poly-MVA, Shark Liver Oil, Astragalus, Green Tea Extract, lots of dark red/black grapes, Noni juice, Fish Oil, Curcumin, Barley pills, Bromelain, Beta Glucan .... and now prescribed anti-depressant that causes brain tumour to self-digest - Clopramine. Will soon start on Boswellic Acids and have just bought PSK
mushroom extract, and thinking about doing Ruta 6
protocol