Amazing Response To Temodar??!!

On 4/24/2008 kathye wrote:

Hi Clare,

 Not sure I can help you with the answers you are looking for.

I was dx with an oligodendroglioma II in Nov. '06, partial resection and I am now on my 17th round of Temodar. I have had stable MRI's since the surgery and receive one every 2 months. I do have simple partial seizures, but that activity is lessening over the past 3 months. I take Keppra (1,500 mgs 2x's per day) for the seizures.

 I get weak when I am on the Temodar, headaches, body aches, nausea...flu like symptoms. Some cycles are worse than others...this one being one of the better ones. Usually within 2-3 days of finishing the cycle, these symptoms subside or disappear. My oncologist has me on this treatment for 24 full months, which means I will be going thru Nov. of this year and then on to a maintance dosage.

I am 54 years old, have returned to work part-time and live life as fully as I can each day.

My doctors feel that I am having a great response to the temodar.

I pray for the best for your Mom and you. Keep up the fight!

If you would like to, send me a private message and feel free to ask me more questions.

Blessings to all!

Kathy

kathy  I to had a oligodengiolmabut i had bits of astrocitoma with it had it out in  98 and no troble till this year the astro started acting up  so back in for a total removal again and now they are doing the radiation and will do the tremodar for about a year i think he said ....iam a llittle scared as i read the blogs in here as i had none of this stuff before and had no troble after the first operation at all except i could not go back to my job loading truck with the fork lift and by the time i could drive again the job had closed down so i just started cleaning homes for people to try to make ends meet  for a while and feel like i could do something i was older when i got this nasty little thing i still had young children at home though 8-10-18=20-iam glad i made it through without any thing then God works in strange ways iam too tired now to start running after kids in there teen years  I am verry lucky my husband is home to help me recover as he is retired now so i dont have to worry about rides and things like that iam verry lucky how some of the people stay so optimistic iam generaly an up person but in here is where i can tell how i feel with out making my husband feel sad or my mother hear something iam feeling that would hurt her i think this is a good venting place where your felling s can get out on a bad day without hurting your wonderful caregivers i hope it does not do harm i am sure everyone feels mad sad overthink things  reed to much into what a look means from a kid i dont know howmany have teans but it seems like ive had kids forever which is great when your feeling great and can go places and have fun but sometimes it gets a little much after 5 times around wheres your homewok -i should have tapes for all the times ive said bring out your dirty cloths  iam sick of being the monster you know well that s the soap for today as the stomach turns lol     peace to you all   pbh