You know, after I just re-read my post...I realized he has SO MUCH to be happy for. He is walking, eating and using the bathroom on his own. Some people aren't that fortunate...to go thru TWO major brain surgeries and beable to function the way he is frankly amazes me. Of course, I am NOT the one going through all of this either. I just want him to appreciate what he still has...because I know this disease will take over. And he really has gotten a lot of quality time. How do I try to make him understand that???
The biggest deficit for him is his speech...and that is killing him. My dad was a lead singer for a band most of his life. 50's and 60's...he was singing up until the day this all started. HE LOVES HIS BAND.
What can I do to get him to realize he still has time to look forward too?
I guess I am just frustrated with him. I want him to be happy....and I want to help him. I'm just running out of energy!!!!
Jill