On 4/24/2008 lessonekidney wrote:
Hello, this is my first time to post. I too am on Sutent as of the middle of Feb. this year. I went through 2 rounds of IL-2 treatments in the hospital to find it was not successful. My doctor felt that Sutent was the best drug to start with. I am on my second month with that and not without difficult side effects. My mouth, tongue and gums took a beating! At the end of the first dose, I could not handle it any longer! I went off it 2 days early and took 2 weeks off. I am through the 14 day period now and am off it for a week. The cancer had spread to my lungs and spine. I am going in tomorrow for a CAT to see if the Sutent is working. God, I hope so!!!!!!!!!!
Hi,Sorry Sutent is giving you a rough time. I just started my 4th round today. It has kept my cancer stable so far. The only side effects are fatigue, feet are sore and peeling during treatment. I know that when this drug starts to fail there's Torisel. This will be the next treatment to fight this beast.So don't despair my friend keep fighting one day at a time. Take Care and keep the faith. John