Hello Everyone,
First and foremost I want to say that I know everyone is going through this and I'm so thankful for each and every day we have! I can't imagine how anyone or any familyor friend deals with the agony of each day!
We found out in November that my husband at 42 at Glio blastoma, he's had perfect health, worked every day, did all he could do to live right and eat right. Surgery was Dec 06, 2007 they could not remove it all due to location, up and out of the hospital in 2 days. Treatments have went great 30 days of radiation and Temdodar, still worked 10 hour days.
Now on 6 months of 5 day cycles of Temodar, fatigue is all we see.
The tumor is still golf ball size in the center of his head.
My question is we keep going back and we have no answser.
They keep saying that he's getting the standard care of treatment, standard protcol.
Is this enough???? We've never seen the same doctor is 6 months.
We have no idea what to do? Are we doing all we can!
He's life is EVERYTHING and I can't imagine if we've wasted one day for
STANDARD treatment.... If anyone can say yes this is all you can do I could live with this, but I really feel that there is so much more!