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Mom Newly Diagnosed T-Pll

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Subject: RE: Mom newly diagnosed T-PLL
Date: 05/21/2008
I am 60 and am 78 months out from diagnosis after a Campath induced remission in  '02, relapse and remission in '04, followed by a non-myeloablative (mini-) allogeneic stem cell transplant in '04 also.  There is very little literature because this is a rare disease and not many peoiple are working on it, plus it is hard to compile data with such few subjects (maybe 125-150 US new cases per year).  There was a scattering of studies out in '02 - '03 highlighting success with Campath.  Campath remains the treatment of choice, sometimes paired with drugs in the Pentostatin family. The disease, as far as I know, is still considered uncurable.  But 78 months months is certainly simething to aim for.  I have been blessed.

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  1. Mom newly diagnosed T-PLL
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