On 5/21/2008 utriumph wrote:
I am 60 and am 78 months out from diagnosis after a Campath induced remission in '02, relapse and remission in '04, followed by a non-myeloablative (mini-) allogeneic stem cell transplant in '04 also. There is very little literature because this is a rare disease and not many peoiple are working on it, plus it is hard to compile data with such few subjects (maybe 125-150 US new cases per year). There was a scattering of studies out in '02 - '03 highlighting success with Campath. Campath remains the treatment of choice, sometimes paired with drugs in the Pentostatin family. The disease, as far as I know, is still considered uncurable. But 78 months months is certainly simething to aim for. I have been blessed.
Hi,
How did you find out about your disease? My loved one thought he had gallbladder issues and found out he had T-cell PLL after bloodtests, CAT scans etc. His oncologist says he's never treated this before and has referred him another physician. Your posting has given me hope to pass on to Dean.
Please keep posting things to continue to give people hope. Thank you.
Diane