I read all your stories and would like to join the club. I also was diagnosed with "tall cell" having my TT the end of August2007, RAI of 125 and a second left neck node dissection in February 2008 as the original ultrasound revealed a very small positive lymph node that did not respond to RAI. Actually, it turned out to be 3 of 28 positive nodes. My endo who claims to have treated patient's with tall cell feels that it is still a papillary cancer so therefore it should be treated like papillary. I'm in constant battle with him after seeing that every piece of info on the internet paints a much gloomer type of scenerio. My concern is that he won't treat it as aggressively as I feel is necessary. I wish I could take his optimism and run with it but I keep thinking if he is wrong, then what, a sorry won't do it so I insure he stays on top of it or threaten and have gone elsewhere. For some reason it seems he doesn't want to lose me as a patient. I had been seeing him for 3 years prior for an unrelated problem, and he was the one who found the nodule in my neck which was catagorized as stage 3 due to my age, lymph node involvement and the fact it did break through the thyroid bed. Some one mentioned that this was their 4 diagnosis of cancer. That is interesting, this was my 3rd diagnosis, having breast cancer in 2003. I just wanted to also mention as I indicated above, I had a known positive lymph node and it did not light up so this is concerning as it can leave us with a false sense that everything is clean. The only way to monitor further disease with a resistant type such as tall cell, is by checking blood levels and ultrasound. Although, the ultrasound did not pick up the second & third node which were very small. Even though it is more aggressive, I understand it still follows the same mode of spread as ordinary papillary cancer. First of course, the thyroid and then the lymph nodes in the neck where it is still treatable. So apparently even though it grows more quickly if confined to the thyroid and neck nodes it can still be treated. I've become my own advocate and make sure my doctors view me as a person and not just another patient and feel pretty confident with the several doctors on board that I just have to follow the regimen of blood tests, ultrasounds and RAI and appointments and otherwise I'm living my life to the fullest. My husband and I just returned from a trip to the west coast (we live on the east coast) and a cruise.