On 4/30/2008 Nurserobin wrote:
Yes, I also have tall cell papillary. It is very hard to "cure". From what I understand, it does not respond well to RAI and surgery seems to be the treatment of choice. I have had 2 surgeries in the past 8 months. What have you been told by your physicians?
Thanks for responding. I was beginning to wonder if I was the only person who had it! I heard there was only one specialist in the country who deal with it. I'll need to find out where he/she is located. Doctors just told me it was a more aggressive form on papillary and that it wasn't that common---my doctor has had only one other patient with it. What have they told you about it? What's our prognosis? Are you concerned? My tumor was over 2--maybe 3 cm.