On 5/1/2008
Nurserobin wrote:
From what I am reading, RAI doesn't treat tall cell very well if at all. Surgery seems to be the treatment of choice. So annual nuclear scans with thyroglobulin levels. I wish there was something more definitive.
Sounds like you have been thorough the ringer. Keep positive and keep fighting. I am going to see Dr. Fagin at Sloan Kettering later this month. Supposedly he is the papillary thryoid cancer "guru". Good Luck!
Say hey dear Nurserobin, thanks for your prompt, informative and friendly reply.It's so appreciated. :) Just came back from seeing the endocrinologist Dr. Kutler referred me to, Dr. Jason Baker and was disheartened he rushed me through the visit, wasn't willing to discuss tall cell as a variant of papillary and all he basically said was that if the Radioactive Iodine treatment is "a failure" in 6 months to seek out other treatments.
Thanks for the tip about Dr. James Fagin, here's his info for others
http://www.mskcc.org/mskcc/html/77942.cfm
And very good luck to you. :)