On 4/28/2008
dianazab wrote:
My Dad was dx'd in Dec 07 - he had surgery that removed a good 90%
of the tumor. He completed his 6 weeks of radiation and temador
and is now on 5/23 for 2 months before repeat scan. His post
treatment scan showed no new growth. We found this encouraging.
He was weaned off of decadron and anti seizure. We have seen
major decline in past 2 weeks which was about 2 weeks after first 5 day
dose of temodor and a good 6 weeks away from last radiation tx.
Very weak, sleeps all the time, has no interest in eating,
drinking. Off balance - took a spill today. Never sure what
day it is or what time of the day it is .....we moved his appt with
oncologist up to tomorrow instead of Friday.. Dr said could be decadron
w/drawl or could be tumor growth but it doesnt seem likely since his
last mri not 3 weeks ago showed no growth, even possibly a bit
smaller??
Is temador worth it? There is no quality of
life right now? Will he snap back - he is 73 - was working full
time up until the diagnosis -----healthy in every other way. I
would love to hear from anyone who has had similar experiences ---His
desire to get stronger is there he just cant seem to get going.
Thanks for any input.
It
is pretty common for the lack of energy to ensue after radiation
treatments. My husband was sleeping approximately 18 hours a day
and had no energy for anything. I felt sure that he was
dying. He is now into his 15th month post surgery and is doing
great. He still is tired but nothing like that first six months
after radiation. It was the radiation and not the Temador that
sapped his strength. They tell you that there will be some
tiredness, but they do not prepare you for the extent of what is
actually happening. Effects from radiation can last up to a year
post treatment. All of the things you describe in you e-mail
happened to my husband. My advice is to let him sleep if he needs
to, eat when he can, these symptoms will subside with time.
It
is a terrifying ride that we are on, and all we can do is hang on and
pray that God will do the best thing for our loved one.
Best wishes to all of you.