On 4/28/2008
FamilyFighter wrote:
I am wondering if anyone can give me any information about my dad's latest difficulty with fighting this terrible disease. He is having a very difficult time with a "full" feeling all the time. His stomach is very distended and now he is running a fever of 100.6. My mom took him to the Dr. and they drew blood and did an xray but then just said "we'll call you." "If you don't hear from us, then head home and get this antibiotic filled."
I am so mad right now! I feel like they are just saying stuff to pacify my parents and they are of the generation to just take what the doctor tells them and do nothing else. I am so afraid that they just arent doing enough!
Also, does anyone have any experience with cancer treatment centers of america? I am thinking we are going to have to try somewhere else. Maybe I am in denial but I am only 32 and I am not ready to lose my father! He is not ready to give up either!
Please someone help me! My husband is deployed and my father is sick and I am about to lose it!
Thank you and God Bless
Get the car packed and drive TODAY to Johns Hopkins or MD Anderson. Figure out where to stay when you get there. This is where the experts are at. I would lean towards heading to the Sol Goldman Pancreatic Cancer Research Center at Hopkins - they are arguably the best. They have a one day screening of patients every Tuesday perhaps (check, call RIGHT NOW! - look them up online... NOW! See if your dad is a candidate. Don't listen to what your dad says - just do it.
If it's too late for that and Gemcitabine and Tarceva Chemotherapy is not an option either, then get him a bottle of protocel. again, do some internet research on protocel.
I lost my dad in October to pancreatic cancer (pc). He thought that the pc must have been a metastasis of his prostate cancer...he was wrong. And he wanted to analyze and make complete sense of everything he heard or did. There is no time for that.
Best.
Andy