On 5/1/2008
Gct2-brenda wrote:
I am scheduled for surgery on May 15th, 2008 to remove 1 large and 2 small Granulosa Cell Tumours. This is my third surgery for GCT - the first in 2002 with complete hysterectomy (1 tumour), a second surgery in January 2007 (4 large tumours), and now a third surgery.
No chemo prior to this as my Oncologist says that GCT appears to be resistant to treatment (both chemo and radiation). Because the tumours have returned so quickly this time, he is suggesting either bleomycin etoposide and platininum BEP or carboplatin and Taxol. The latter sounds less toxic .....
Just wondering if anyone out there has had treatment for GCTs (other than surgery), what combination, and what result ....
Thanks
Hi Brenda--My name is Kathy-- I am a 5 year survivor of GCT. I had a fantastic GYN.onc. in Clearwater, Fl. who removed a 35 pound tumor in 2003. I lost about 60 pounds, and my hair. I had the combination of bleomycin, etoposide and cisplatin for a 12 week course. five days on and then two weeks rest. They gave me Kytril and Zofran for the nausea and it worked fantastically for me. The biggest side effect from the chemo is peripheral neuropathy in my hands and feet (they feel like pins and needles) but the neurologist has prescribed Lyrica for that and it works wonders. I feel good enough to work part-time, and have a very rewarding life now. I hope this helps. Good luck on your surgery, and may you do as well as I did. Please let me know what happens. Kathy