On 5/13/2008
evancheryl wrote:
Anyone have any recommendations for severe fatigue. My wife has GBM IV and has been doing really well the Avastin+ CPT-11 since late January. Over the past two weeks the fatigue factor has been severe and she has been sleeping up to 20+ hours of the day. The first three months of treatments weren't this bad. Anyone with suggestions to help with energy levels (meds, holistic health, etc..)? The good news is the MRI today still shows a 95% shrinkage since January 21st 08 with the regimen she is on.
Thanks,
EL
Oh my goodness, I can so easily relate to what you are experiencing. they found a GBM tumor June 07, tumor removed July 5th. After radiation and chemo which ended September 11 (44 radiation treatments), the fatigue set in. It is not anything that can be "fixed" with a nap, the mere thought of getting up and having a shower put me back to sleep.
I was sleeping 18 to 20 hours a day. I told my doctors that I am so thankful to be alive but I am not LIVING. I could not function. Thanksgiving and Christmas are just a blur. Two months ago they put me on ADDERALL 10mg extended release, just one a day. It has done the trick. The drug has awakened my brain. Fatigue still is still a factor, some days I can go all day without even thinking of a nap. J O Y.
Adderall was originally marketed and still is for Children with ADD, how it knows it should wake up a brain or calm one down is a mystery, one I am not questioning.
I wish you good fortune with dealing with the fatigue factor.... have patience, we wish you HOPE and prayers
Frances