hello my names Anna and I have just been reading through many of the emails on the net. I came across yours that you wrote only a few days ago. My Dad has just been diagnosed with GBM and has been told he has 6-9mths left with us with treatment. Obviously we are all in shock, angry, sad. He has had 1 of the tumours removed from this frontal lobe already and has many others through-out his brain. Is there any news or anything else you have tried/ experienced that may help us? I would appreciate anything you have to offer.
Take care.
On 5/13/2008
texasbelle5 wrote:
First of all, quit reading the crap that is posted online about mortality rates with GBM.. I was Dx June 2007 with GBM IV. The surgeaon could only debulk one tumor 65%. The others are inoperable. If I had believed what I read I would be dead by now. One year later I am stable, on Avastin and doing well. I have never had a seizure in all of this time either. Not bad for an initial Dx that gave me 3-6 months to live.