On 5/14/2008
irenerum601 wrote:
Hi, I am Irene, 55 years old, diagosed july 2006 at Memorial Sloan Kettering in Manhattan, NY. Had surgery, debulking, etc. stage 111c. Did IP therapy and clincial trial of avastin until july 07 when I had a bowel obstruction and had to stop avastin. After all this aggresive treatment, was in remission until April 2008, 15 months. CT scan revealed early recurrence and CA 125 rising slowly. My initial ca125 was 30 a false negative when I was first set up for surgery. At current it is 70. At the same time I was diagosed, my middle sister also was diagosed with Stage 4, she is 3 years older than me.Our older sister was advised to remove ovaries and did immediately. Our mother 37, years ago. died of Ovarian Cancer within three months. We were well aware of this dreadful disease and we followed our Gyn visits regularly but not aggressively. None of our Gny's were aggressive and gave no feed back to us.
As of May 1, 08 started Armidex only for 9 days, had nausea and my oncologist switched to Famara. Anyone have any luck with Famara? Any side effects? I'm beginning to fell a little nausea again and extremely tired. I don't know if the tiredness is from depression also. This disease is a mental game, never know when the next bomb will drop. It consumes every minute of your mind. I would love to know how woman have the courage and stamina to get going cheerfully.
I wish anyone suffering from OC the best and peace of mind.
Irenerum601
Hi Irenerum601, I read your request for an ans. and tho I have never been on Famara, I do have a question. I was on Taxell/carboplaitin with my first diagnosis and was in remission for 3yrs and was only a stage 1. It came back with a vengence last April. Used Taxell and Carbo again for 8 treatments, went back into remission for 6 mo and have it again but not as bad....am on doxil but I have this weird feeling it isnt working altho I have only done one treatment so far. Just one of those women intutions we get. But they say you have to give it at least 2-3 trys to see what it is doing....I will be doing the lab work next week and I will pretty much take a guess then. My question is...did they try the above on you? Did the chemo's cause your bowel obstruction? Will wait to hear and the very best of luck to you with prayers and I know the mental and emotional strain it can put on us.....curly66