Hi,
Sorry you are having to go through this horrible experience. My mom was dx at 59 years old and passed away at 61. She had a great year and some months before she began to decline. She never lost her sense of humor and hope of a cure. She passed peacefully and quickly. My neighbor also had this disease and he also went peacefully. The biggest sign we got she was going was her breathing. She was lying on the couch one minute and then the next she was breathing hard and loud. She passed away within minutes. She had a wonderful life with so much more ahead of her. I hope your mom is one of the lucky ones and beats this.
Best.