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Mother

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Subject: RE: Mother
Date: 05/15/2008

I would also suggest the brainhospice website, because it will describe a lot of common symptoms.  My husband has been showing most if not all of those for 4.5 months now so I would not necessarily freak if she starts showing some of the symptoms.  The timetable is not true at all for my husband.  I would also read the stories on the website.  They also illustrate how different each individual is.

Our doctor said often it will be a peaceful and relatively painless death if the patient goes into a coma which often happens.  However some of the brainhospice stories show how that is not necessarily going to happen.

 I found a little comfort actually talking through scenarios with our hospice nurse.  I am to call them if I become concerned, and they will come out day or night.  I have heavy duty medications on hand if he should have a lot of pain or distress.

Lately I have been listening to a lot of rough irregular breathing overnight (it's hard to sleep).  This has been going on for a month.  But I find if I give him oxygen his breathing settles down.  He has been diagnosed with sleep apnea long ago, so maybe that's all it is. 

I wish you the best.

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