Thank you for all of your messages. We found out today that my Dad is near the end of this. He can't have anymore radiation at this point because he has major brain swelling. We don't know if it's because of not taking his steroid, taking a lower dose or if the tumor is already growing back since his surgery on April 11th. They wanted to admit my Dad to the pallative care unit and I declined for him. I wanted to get him to his home...the entire way driving him there I was thinking "How in the world am I going to do this?" I did get to talk to a social worker, they are going to set up a visiting nurse type of thing. I could of had them come out on Saturday...but my dad declined that. He said Monday. So Monday they are calling me to set up a meeting and discuss what kind of visits will be available. I was told that this isn't a 24/7 care type of thing. There are services like that..but it's not covered. Does Medicare cover anything like that? I suppose in the next few days I will learn about all of our options and how things will go.
One day at a time is all we can do and I just have to believe in my heart things will happen the way they are suppose too.
Thanks,
Jill