On 5/18/2008
georgetwo wrote:
I have been diagnosed with Fibromyalgia over the past two years, when the medications were not working, I continued to see different Rheumatologists who were unable to make any decisions about treatment, then finally they found the thyroid cancer, and all now agree that all my pains etc. may very well be caused from the cancer.
I just had a tt, with one removal of parathyroid glad, about 1 week ago, an am now feeling the effects of low calcium absorp. I say, keep going to different dr.s for 2, 3 and 4 opinions if you need to. It doesn't hurt!
Hi, I can relate to what you are saying. I felt like a hypocondriac for years going from doc to doc. Now come to find out that I was yo-yoing between hypo and hyper all ths time. I honestly think that the cancer was somehow a result or reaction to a weakend immune system especially since mine started out as Autoimmune Thyroiditis. I always had a "normal" TSH but my uptake was abnormal as long as 5 years ago. All they went by was the TSH though. It has been frustrating. As yourself I has TT a month ago 1 Parathyroid. I have Multifocul Papillary cancer 4 tumors. The Dr. did a resection lymph nodes thinking it had spread. (they biobspsied some of them and found no spread) I am hoping that my WBC is clear after my RAI next month.
CALCUIM CALCIUM, I ended up in the ER a couple of week after my TT because my caclium got so low. The doc might tell you that it is rare that you shouldn't have calium problems that long after surgery. IT IS NOT RARE ESPECIALLY IF THEY REMOVED ANY PARATHYROIDS. Your calcuim can get messed up for days, months, years or even forever. The Parathyroids control and moniter your calium levels in your body. During surgery they can go into "shock" and not work very well or simply not work at all. The problem usually resolves itself with oral Tums. If you are having symptoms, Tingling- hands, feet, twitching around mouth, face eyes, dizzines, disoriented, twitching muscles like after running even in your back and arms. Call your doc ASAP you probably need IV Calcium. If your symptoms are mild go and get a blood test to check your calcuim levels. If they catch it before it gets bad your doc can put you on Citrical (calcuim citrate) and Calcitriaol (Rx Vitamin D only $4 at Wal-mart). I am on 3,200 mg down from 4,800 and 50mcg Calcitriol twice a day. It's been two weeks and I do feel better. Another thing I had to do was cut my Cytomel from 50mcg per day to 25 I went Hyperthyroid within about 5 days of being on it. Whewww.. I don't feel great but better! I have found that the more educated and infomed I become about this and the more people I communicate with makes it so I don't feel so all alone and it becomes a little easier to deal with.
About the Fibromyalgia too, Mine has actually gotten worse, not aroung the neck and shoulder area. That is about the same. My arms, back, knees, legs, and heels seem much more sore. Oh well still more to go. I hope anyone going through this to have a more comfortable and enjoyable rest if the summer when we are done the our RAI and WBC"S.