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Snuc Prognosis

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scootie45
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Subject: SNUC prognosis
Date: 05/18/2008

My husband was diagnosed with SNUC 4 months ago- he has undergone 40 IBRT treatments and 3 rounds of Cisplatin and 5FU.  Yes the Cisplatin is NASTY stuff.  He has had so much trouble with nausea.  They tried everything for nausea the first round and nothing helped.  The second round he had Emend and that helped a lot.  Still trouble with nausea, but not as bad.  He has a feeding tube into his jejunum (the g tube did not help-still nauseated and vomiting) food and liquids-even water doesn't taste good.  He goes in for IV fluids 3 times a week and Zofran IV as well as orally yet.  He also has a lot of trouble with mucus in his mouth and still a lot of sores and blisters in his mouth as well- this is nearly 3 weeks since his treatments have finished. His nose is terribly stuffed up-very hard to breathe. He also his difficulty with vision in the eye on the side of the tumor since the treatments.  He had a CT scan -the tumor has shrunk from 2.9cm by 1.9 cm to 1.9 x .9 cm and will have PET scan on Monday.- we are scared to death about the results.  I don't know how much more he can take.  It scares me when I read about the prognosis of SNUC.  My husband has not gotten on the internet like I have and has not seen all of this-probably a good thing!  Anything positive anyone has read or experianced would be appreciated.

 

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