Just wanted to post an update to my thread "Near the End"....Yesterday morning we had to call 911 to get a transport so we could take my Dad in. He had loss all ability to control urine and we know we had done everything we could at home. It was a rough weekend, but now I am SO happy he got the weekend in his home. Each day starting declining more and more. On Saturday afternoon he started refusing the decadron and on Sunday evening he was also refusing the seizure meds.
I had printed out the timeline on Brainhospice.com a while back and when I refer to it...he went from 3-6 weeks on Friday, to 2-3 weeks on Saturday to 1-2 weeks on Sunday and yesterday I think we are at the 8-48 hours.
We picked a nice Hospice facility and they reassured me that I had done my duty as a caregiver, given my dad all I could and now it was time to just be his daughter...take of care Dad that way. It's OK not to be the caregiver at the end. That really made me feel happy. My dad is so calm and peaceful. He is sleeping like a baby. He looks so comfortable and it's just amazing how fast this came on.
Hospice has been wonderful, but it's also a bit creepy when your going in there. You know what the outcome will be. But it gives you a sense of peace to know that all the family that is there is going thru the exact same thing as you. This disease has been a roller coaster ride, never knowing the outcome..until Hospice. Finally no surprises....the goal is to keep your loved one comfortable and pray for a peaceful end to their pain and suffering.
Thanks to all of you who have posted on the thread. I mean it when I say this was a great place to turn too.
Thanks,
Jill