Hello I am 38 yr old Female and I have a Diagnosis in the process of confirmation for Myelofibrosis. I have had two BMB in the last month and both were dry taps!!! Has anyone else found this to be a common issue for MF patients. They have tried several locations and no luck. I have hgb of 8.8 and rbc and wbc stay right on the boarder or just below normal. Platlets are on the high side of normal... I am being seen at MD Anderson they are wonderful. I have weekly iron infusions and aranesp treatments for chronic anemia. My spleen appears to be normal and my karyotype came back normal. but they were unable to do the cryogenic test due to dry tap.
I would appreaciate anyone who has any experience with MF who can chat lab results with me. I have doing alot of home work but would be nice to know what to expect and when to be alarmed, Seems like everything is alarming right now :) trying to stay patient while I wait for the second BMB results they will all be back on June 17th Long wait ..............I am just so tired all the time. Making the bed has become an event. I would full time in an office environment and alot of hours. energy drinks and G2 water and b12 shots seem to help. I also had a gastric bypass (rouge n Y) in 2002 (lost 174lbs) but I have absorbtion issues that dont help the situation. Makes some meds a challenge to get orally.