Bubbles,
My heart goes out to you. You are soooo young. My dad was diagnosed recently. He is 70. It is difficult to watch this vibrant man go from being very active to being so fatigued. Mom took him into the hospital yesterday for that very reason. They gave him more transfusions & platelets. His platelets are now a whopping 34 which his actually good for him.
This is a very discouraging disease from where I sit. Age may provide with options my dad is not eligible for. Take care.