Summary of previous: My husband, Brian, had surgery and was diagnosed with stage 3-4 cancer of the terminal ileum in Aug.06. Removal and resection. Began chemo treatment (Folfox, oxyplaten, 5fu) in Oct 06 for colon cancer (his was so rare, and so close to the colon, that was the determination), trying to get anything microscopic left. Discharged from chemo Mar 07. Bloodwork monthly and CT/PET scans every 3. Port removed Feb 08. Continued bloodwork and CT/PET.
Mar 08, CT showed suspicious activity at site of surgery. CEA levels not remarkable. Follow up PET revealed same. Surgery set for May 08. Surgery found golf ball sized recurrence touching/laying on the ileac artery. Cannot be removed.
Yesterday we finally met with the oncologist. This is considered a local recurrence. Treatment will be two phases.
Phase 1 is radiation and chemo, daily. Not yet sure whether it will be oral or IV. Doc wants to study it some more and see what he determines the best course.
Phase 2 is chemo only, to combat any microscopic remains. (Yeah, right! That is why he had chemo in the first place and here we are!)
Arnold, if you are out there, I printed your messages and had them in my hand to show the oncologist. He said everything you mentioned, including the same drugs. I felt confident that he had done his research, because I had your info with me. Thank you for sharing your story.
He mentioned side effects of the xeloda included redness and itching of the palms, some skin peeling, etc. Did anyone experience these? What other side effects did you experience? It sounded like Brian could walk away from the radiation and go straight to work? Does radiation have minimal effects? There is a part of the small intestines which will probably be a part of the radiation, they cannot be separated during the treatment. How will this effect them?
Thanks to everyone who shares regularly on this site. I have found it to be a great resource and comfort. I will try ot share as much with you as you have shared with us.
LeeAnne