Hi everyone.
This is my first post to the message board after many months of reading. My husband is eight weeks out of radiation/erbitux treatment for tonsil cancer. The positive is that he had a clean post treatmnet PET scan. He had a PEG tube (his lifeline) in 3 week of treatment and remains on today. He struggles to take water or any liquid and usually tries once every 3 days. After each try he feels the backlash in pain, coughing, thick mucas, etc. He is really miserable and doesn't see any end in sight and is getting depressed about the future. I have suggessted a few things: try to do something small each day that provides joy, like gardening; perhaps requesting a weekly visiting nurse to help him regain his swallowing funcion and minimzing the pain, and maybe getting a doctors appt sooner than his next monthly visit.
I am there for him and want to help but don't know the best approach. Does anyone have any suggestions?
Thank you all so much.
Sarah