So we went for a consultation, did zillions of tests and saw the good doctor. He said the following:
1. He wouldn't have treated mom (her doctor gave her vel-thal-dex and rev-dox-dex) at all- her myeloma was indolent at worst
2. Now that she had been treated, the disease changes and treatment may be necessary for her to survive.
3. However just on the off-chance that the disease hasn't changed he is prepared to wait and monitor her blood monthly for 6 months.
As for the doctor who treated her, I quote "these modern doctors...use the modern wonder drugs....without thinking of the consequences"
If the disease did change, mom only has transplant (T3 protocol, whatever that is - still need to read carefully) as an option.
To say that I have mixed feelings regarding the doctor who treated her is to say nothing.
Now, on the factual note: the UAMS MM Institute is absolutely fantastic, they do what they promise and really look after you. It is really scary to see dozens MM patients of different stages as some are not an optimistic sight but after a day or two everyone becomes friends and somehow people with ports, in wheelchairs and on pain medication stop causing paranoya (I am not being offensive, mind you, I am talking about never seeing that side of life). Mom also did a bone marrow gene array test which I need to read about but apparently it should help to quantify her disease.
Overall, very positive impression, we are to go back there in January (hopefully not earlier, hopefully, hopefully).